Twins turning to stone due to genetic condition

DECCAN CHRONICLE
Published Jul 17, 2017, 5:21 pm IST
Updated Jul 17, 2017, 5:21 pm IST
Zoe and Lucy are one of just three twins across the globe to have the rare condition.
Zoe Buxton and Lucy Fretwell have one-in-two-million genetic condition. (Photo: Facebook / Lucy Fretwell)
 Zoe Buxton and Lucy Fretwell have one-in-two-million genetic condition. (Photo: Facebook / Lucy Fretwell)

A one-in-two-million genetic condition is slowly turning 26-year-old twin sisters from Northern Ireland to stone.

Zoe Buxton and Lucy Fretwell are one of just three twins across the globe to have the rare condition, according to a report by the Daily Mail. What they have is a condition called fibrodysplasia ossificans progressiva (FOP), which causes bone to replace their muscle and tendons.

The report also explained what the condition is. Here are some of the facts:

* FOP is a rare inherited disorder and worsens over time.
* Causes bone to arise in muscle, ligaments and tendons.
* Those with it have shortened big toes at birth.
* FOP causes swelling and makes it challenging to eat if the jaw is affected.
* Suffers have limited movement.
* While there is no cure, treatment helps to relieve pain.

Having each other has helped Zoe and Lucy get through the tough days. They are also considering having children despite the risk of it being passed on. Currently they are participating in a trial for a new drug that could help their condition.





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