Juliana Snow has suffered from an incurable neurodegenerative illness
Juliana Snow is just 5 years old - viaweb
Washington: An Oregon family’s decision to respect the end-of-life choice of their 5-year-old daughter on Wednesday has sparked a heated debate about this difficult question.
Juliana Snow has suffered from an incurable neurodegenerative illness called Charcot-Marie-Tooth disease, or CMT, since birth. The child can’t move or eat, wears a breathing mask at all times, and is confined to the four walls of her family’s Portland home.
According to her doctors, Juliana’s CMT has progressed to such a critical stage that even a minor cold could kill her, The Huffington Post said. “For her, there is no light at the end of the tunnel,” Dr. Danny Hsia, Juliana’s pulmonologist, said.
( Source : agencies )
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